Monthly Archives: June 2015

Special Parents Confidential Episode 26 Parent Problems

Parent Problems

Parents of special needs children face problems that few others can understand. Extraordinary  joy and crushing despair, sometimes in the same day, the same hour, the same moment. One thing is true, people who relate the best to these moments are other parents of special needs children. We have a bond that, while often unspoken, is a shared knowledge that ‘this is our life’ and we all know exactly what it’s like.

For those who are just starting out on their journey with a special needs child, the fear and uncertainty can be very daunting. How do you cope? Where do you look for help? Who can you trust? And possibly the most important question of all, who understands what this means?

To help answer those questions, Donna Kirk has returned for another interview episode. Donna was my guest in Special Parents Confidential Episode 23, in which she talked about her book, Finding Matthew, the story of her son who was born with severe brain damage. She and her husband, Ed, experienced everything a parent of a special needs child could face. A terrible life-altering diagnosis, years and years of therapies, trying to find help for their son, watching him struggle into adulthood, and finally facing the hardest loss of all, the death of their special needs child.

After we finished the interview for that episode, Donna contacted me again and asked if she could talk about the lessons she learned and how they might help parents who are currently struggling and trying to cope with the emotional rollercoaster that raising a special needs child can cause. Top of the list for any parent, honesty and communication.

For more resources on specific issues, check out our Helpful Links page.

As always a reminder that if you like this episode of Special Parents Confidential or any episode we’ve done, please share our site with your friends, family, and all your connections on social media. You can do this easily with the social media buttons located on this page. Like us on Facebook, follow us on Twitter, add us on Google Plus, Tumbler, Linked In, Pintrest, Stumble Upon, Reddit, or other social media sites that you use. You can also sign up for our email service and have new posts and podcast episodes delivered right to your inbox the moment they’re available online. You’ll find the form to do that to the right of this posting. We’re also on iTunes, Stitcher, and Poddirectory as a free subscription and if you have a moment, feel free to write a review about our podcast there. Anything you can do to help spread the word about Special Parents Confidential will help us be able to continue these podcasts.

Special Parents Confidential Is Now On Poddirectory

Special Parents Confidential Is Now On Poddirectory.

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Follow the link to find Special Parents Confidential on Poddirectory by clicking here.

Poddirectory is a quick way to listen and search thousands of podcasts, including Special Parents Confidential. It’s done in a Facebook and Twitter friendly format, which makes searching and playing much easier while using your favorite social media site.  Be sure to repost and retweet our updates whenever you can!

We’re going to keep looking for great places for you to find Special Parents Confidential, and continue to make finding our podcast easier. Thanks for your support!

Special Parents Confidential Episode 25 Early Intervention

Early Intervention.

There’s probably nothing more nerve-wracking and stressful for any parent than the realization that your new baby, your toddler, your child might have some problems. Whether it’s not speaking, not walking, or not engaging socially like other kids, the hardest question many parents face is, what do I do about this?

Of course friends and relatives will tell you, oh it’s alright, that’s just how some boys or some girls are… and they’ll grow out of it. But that’s not always the best advice, and if  your child does have a developmental delay or a learning disorder, they are simply not going to grow out of it. They need help. And then the question becomes, where do I get that help?

Our guest on this episode of Special Parents Confidential can answer a lot of those questions. Barbara Corbin is the Early On Coordinator with the Kent Intermediate School District in Kent County, Michigan.  She handles Early Intervention, and Early Childhood Special Education with school districts. She helps parents get their first diagnosis and coordinates getting help for children right at the very beginning. Thanks to advances in medical research and therapies, children can be diagnosed very early, and Early On programs can start at age two.

Links to websites mentioned in the podcast:

1800EarlyOn Early Intervention information for Michigan, with links to other States. The website name is also their toll free phone number: 1 800 Early On.

The Arc of Kent County Information resource for people with intellectual and developmental delays.

Center For Disease Control (CDC) Page for Parents and Infants This page has the Milestones and Schedules information to track expected progress for infants and toddlers.

Great Starts Collaborative Early Intervention Page Success Starts Early’s webpage on Early Interventions. The entire site is full of helpful information for all parents.

Pathways.org  Free online resource and tools for parents.

The Early Childhood Technical Assistance Center Online resource tools for families of children with special needs.

Michigan Alliance for Families.  Provides information, support, and education for families who have children (birth through 26 years of age) who receive (or may be eligible to receive) special education services.

Special Parents Confidential Episode 24 MI Lt. Governor Brian Calley

MI Lt. Governor Brian Calley.

Michigan, like many states, has been working on changes to laws in special education to make sure that the rules are up to date and following the laws that are set down in the Federal Individuals with Disabilities Education Act, or IDEA, which are the main requirements of how special education is to be handled across the United States.

Last December in Lansing, the Joint Committee on Administrative Rules was going to approve some changes to the Michigan Administrative Rules for Special Education (MARSE) that would have severely impacted parent participation in their children’s education. The Joint Committee was holding a public meeting to take comments from parents back on December 11th, when an unexpected guest stepped forward. 

Michigan’s Lt. Governor, Brian Calley asked that the Committee not approve the proposed changes and take no further action, because he believed that there needed to be more participation from parents in this process. The Committee agreed, and shelved the rules. Since that time, Lt. Governor Calley has embarked on a series of open meetings across the State of Michigan, where he invites parents to talk about their experiences with Special Education in their local districts. He’s also created an online survey for Michigan parents to highlight their experiences, both good and bad, in dealing with Special Education services in their districts.

What the Lt. Governor is doing is an extraordinary step in making sure that parents are more involved in determining special education procedures for their children in the IEP (Individualized Education Plan) process. We are very please to have Michigan Lt. Governor Brian Calley on this episode of Special Parents Confidential to talk about what the changes to the MARSE regulations would have meant, and the personal reasons why he’s made special education in Michigan an important priority.

Links that are mentioned in the podcast: 

Michigan LT. Governor Brian Calley – the official State Website.

Lt Governor Calley’s Online Special Education Survey

The Lt. Governor’s Facebook Page

PR.150610.CalleySpecialEducationSurvey – Press release with detailed explanation of Lt. Governor Calley’s online survey.

As always, a reminder that if you like this episode of Special Parents Confidential or any episode we’ve done, please share our site with your friends, family, and all your connections on social media. You can do this easily with the social media buttons on our website. Like us on Facebook, follow us on Twitter, add us on Google Plus, Tumbler, Linked In, Pintrest, Stumble Upon, Reddit, or other social media sites you use. You can also sign up for our email service and have new posts and podcast episodes delivered right to your inbox the moment they’re available online. We’re also on iTunes and Stitcher as a free subscription, and if you have a moment, feel free to write a review about our podcast. Anything you can do to help spread the word about Special Parents Confidential will help us be able to continue these podcasts.