Tag Archives: Aspberger’s

Special Parents Confidential 70 Autism Goggles Part 2

Autism Goggles. Part 2.

We’d like to introduce you to Autism Goggles, a website and blog dedicated to helping people understand what it’s like to have Autism. Created by Maxine Share, and her son Daniel Share-Strom, this site is an outgrowth of Maxine’s work as a special education advocate. She began this career while trying to help Daniel get the help he needed in school.

Put On Your Autism Goggles

The best way to understand any situation is to talk to someone who has experience with it. In order to understand what it’s like to have Autism, you should hear from someone who has Autism. Both Daniel and Maxine have Autism, although Maxine didn’t get her diagnosis until later in life. Through their blog and their advocacy work, they encourage ‘neuro-typicals’ to “put on your ‘Autism Goggles’ to understand the autistic mind.

There’s Much More Beneath The Surface

What you will learn is that people with Autism don’t want a “cure” – they just want acceptance and understanding of the way they are. Autism is not a disease. It is not a disability. Browsing Autism Goggles, you’ll learn it’s simply a different kind of social interaction and thinking. You’ll realize while people with Autism may have difficulties in communication, that doesn’t mean they don’t have anything to say.

Part 2. Daniel Share-Strom

For SPC Episode 69, we talked to Maxine Share, who started Autism Goggles as an outgrowth of her advocacy work that began with her son.

In Part 2 of our interview, we talk to Maxine Share’s son, Daniel Share-Strom. His own struggles with Autism and Aspberger’s Syndrome were the basis of Maxine’s advocacy for parents. From his bio on the Website: “Daniel is a writer, motivational speaker, workshop facilitator, and co-founder of Autism Goggles, a social initiative determined to ‘reframe understanding of autism’ to focus on ability and strengths.

“Diagnosed with autism at a young age, Daniel has been moving audiences with his self-awareness, poignant insight, and humour for nearly 15 years.  He does this with full-day workshops and speeches which help parent groups, universities, autism organizations, workplaces, and health care professionals to understand the many features and traits of autism using plain language and practical examples. Daniel is committed to equality, fairness, and social justice for all people as he works to shift society toward acceptance and understanding of neurodiversity.  He speaks up and speaks out for those who have not yet found their voice.”

Links Mentioned In This Episode

Daniel Share-Strom’s Ted Talk Speech

Autism Goggles Article on Anxiety

Teaching A Student With Autism – For Teachers.

Engagement Page – Where To Connect with Autism Goggles

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Special Parents Confidential 69 Autism Goggles Part 1

Autism Goggles. Part 1

We’d like to introduce you to Autism Goggles, a website and blog dedicated to helping people understand what it’s like to have Autism. Created by Maxine Share, and her son Daniel Share-Strom, this site is an outgrowth of Maxine’s work as a special education advocate. She began this career while trying to help Daniel get the help he needed in school.

Put On Your Autism Goggles

The best way to understand any situation is to talk to someone who has experience with it. And the best way to understand what it’s like to have Autism, is to hear from someone who has Autism. Both Daniel and Maxine have Autism, although Maxine didn’t get her diagnosis until later in life. Through their blog and their advocacy work, they encourage ‘neuro-typicals’ to “put on your ‘Autism Goggles’ to understand the autistic mind.

There’s Much More Beneath The Surface

What you will learn is that people with Autism don’t want a “cure” – they just want acceptance and understanding of the way they are. Autism is not a disease. Autism is not a disability. Through Autism Goggles, you’ll learn it’s simply a different kind of social interaction and thinking. You’ll realize while people with Autism may have difficulties in communication, that doesn’t mean they don’t have anything to say.

Part 1 – Maxine Share

We’ve divided this interview into to separate episodes. In Part 1, you’ll hear from Maxine Share, as she tells her story of how she became a special education advocate in her home of York, Ontario, Canada and the work she does with Autism Goggles. Part 2 will feature our interview with her son, Daniel Share-Strom.

Links Mentioned In The Episode

Autism Goggles Website

What Good Teachers Know About Teaching Kids With Autism – blog article.

Girls And Autism – Missed Diagnosis Can Be A Nightmare – blog article.

Reminder.

Please help spread the word about Special Parents Confidential. Use the social media buttons located on this page to post our podcast to all of your favorite social media platforms.

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Special Parents Confidential is now available on Spotify! Just follow the link here to subscribe to our podcast for free.

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Special Parents Confidential 67 When the Nightmare Happens

When the Nightmare Happens.

This episode could probably be called Parent Story number four, but I’ve chosen to call it When The Nightmare Happens. Because this is the kind of parent story that you don’t want to happen.

Meet Kiri Salazar.

Kiri Salazar is a person that my wife Sarah and I met here in the Grand Rapids Michigan area. She is a widow and her son Alexei has non verbal autism. Like many people she has a blog, where she writes about her life and her son’s challenges. This past November, 2018, Kiri shared a story about an incident with her son that was about as frightening and stressful as it can get. Fortunately, as you will hear, the incident eventually turned out fairly well. But I felt it should be shared, which is why I invited her to be on this episode, and she agreed to do it.

What Would You Do?

I should warn you that Kiri’s story is difficult to listen to. But her hope is that by sharing it she can perhaps help other families who may be faced with a similar situation. Our greater hope is that some officials in government, who are in a position do something about the challenges we talk about, can help to remedy these situations by coming up with ways to provide better support to families.

Links

You can visit Kiri’s blog at: The Dust Season 

Kiri’s original blog post about her son’s incident: With Prejudice

Reminder

Please help spread the word about Special Parents Confidential. Use the social media buttons located on this page to post our podcast to all of your favorite social media platforms.

A great way to get in touch with us and comment about episodes you’ve listen to is on our Facebook Page. Please “like” the page and tell us what you think. You can even suggest topics for upcoming episodes and ask questions about previous shows.

Special Parents Confidential is now available on Spotify! Just follow the link here to subscribe to our podcast for free.

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Special Parents Confidential Episode 57 Parent Stories 02

Special Parents Confidential 57 Parent Stories 02

We continue our new series of episodes dedicated to Parent Stories – real life experiences raising a child with special needs.

When I first started doing these podcast episodes, my goal was to provide two things – answers and advice from experts on many subjects of concern to parents of special needs kids, and stories of experience from other parents of special needs kids. I wanted to re-create some of the support group meetings I’ve attended where we would hear from an expert and the the parents would get to talk. Hearing parent stories can help because we all seem to do better when we know we’re not alone.

Of course, when the episodes started I mostly began finding lots of professionals willing to talk about their areas of expertise that could help all of us with our kids. And the parent stories idea has kind of taken a backseat to those episodes on advice.

We Really Are All In This Together.

Well starting with this episode, we’re going to feature parent stories. We’ll hear from parents who’s kids are either still in school, or recently graduated from school. Parents who have worked for and fought for their kids, parents who have struggled and may still be struggling, or parents who have somehow gotten through. They may not have always gotten exactly the help they wanted for their child, but they were able to get  the best they could and their kids are either on their way toward independence or already there.

We’re giving these episodes the designation, Special Parents Confidential Parent Stories, so that you’ll know that they’re different from the regular episodes. But I think you’ll find yourself learning as much from these stories as you do from our expert interviews.

Welcome Sandy Carlson

In this episode we hear from Sandy Carlson. She and her husband Steve have three boys, the oldest of which is Harrison, who has autism. Harrison is now in his 20s and has a full time job, but as you’ll hear from Sandy, they didn’t really know anything about what to expect for his future. Not much was known about the future for children with autism, even just 20 years ago, and the improvements that have come since then have made a real difference.

Connect With Us On Facebook!

A great way for you to stay in touch with me and communicate your thoughts on these episodes is on the facebook page for Special Parents Confidential. Use the Facebook button on the right side of this website, or the button at the bottom of this text, or use this link. You can also search Special Parents Confidential on Facebook. It’s also a great way to share our podcast with everyone you know.

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Learn The Signs – Act Early – Revisiting SPC Episode 37

Learn The Signs – Act Early

Last spring we talked to the Center for Disease Control and Prevention about their Learn The Signs, Act Early, program to help parents better understand if their child has Autism. 

Autism is a growing concern for parents across the United States and around the world. It’s estimated that 1 in 68 children will be diagnosed as being on the Autism Spectrum. The good news is there are now more effective treatments and therapies than ever before, and there is more credible research and information that can help parents, educators, and medical professionals work effectively with children and adults with Autism to lead healthy and productive lives.

Learn The Signs. Act Early. From The CDC.

To help parents understand what Autism is and how to better monitor their children’s developmental milestones, the Center for Disease Control and Prevention, commonly known as the CDC, has launched a new program website: Learn The Signs. Act Early.  From the website: 

“From birth to 5 years, your child should reach milestones in how he plays, learns, speaks, acts and moves. Track your child’s development and act early if you have a concern.”

In this episode of Special Parents Confidential, we talk to two guests from the CDC; Katie Green, who is project lead for Learn The Signs. Act Early, and Dr. Jennifer Zubler, who is a pediatric medical consultant for the CDC’s National Center on Birth Defects and Developmental Disabilities. You’ll learn about how the program began, some of the milestones that your child should achieve, the importance of early diagnosis, and how to talk to your doctor or pediatrician if you are concerned about your child’s developmental progress.

Important Links From The CDC:

Learn The Signs. Act Early.

Developmental Milestones.

Printable Milestones Checklist pdf.

Amazing Me – It’s Busy Being 3! Parents, this book for children ages 2-4 will show you what to look for as your child grows and develops. Whether you read this story to your child online or have a hard copy of the book, ask your child to find the koala bears. Each page with a koala bear also has a star and milestone at the bottom just for you. See if your 3-year-old is able to do some of the same things as Joey.

What To Do If You’re Concerned.

The National Center on Birth Defects and Developmental Disabilities. – Resource website from the CDC with great information on many issues for parents of special needs children.

As always a reminder that if you like this episode of Special Parents Confidential or any episode we’ve done, please share our site with your friends, family, and all your connections on social media. You can do this easily with the social media buttons located right below this paragraph. Like us on Facebook, follow us on Twitter, add us on Google Plus, Tumblr, Linked In, Pintrest, Stumble Upon, Reddit, or other social media sites that you prefer. You can also sign up for our email service and have new posts and podcast episodes delivered right to your inbox the moment they’re available online. That form is located to the right of this text. We’re also on iTunes, Stitcher, TuneIN, and Poddirectory as a free subscription and if you have a moment, feel free to write a review about our podcast on either of those services. Anything you can do to help spread the word about Special Parents Confidential will help us be able to continue these podcasts.
Thanks for your support!

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Special Parents Confidential 44 Alix Generous

Alix Generous.

In 2015, a young woman named Alix Generous gave a Ted Talk speech that has subsequently had over 14 million views. The speech was entitled, “How I learned to communicate my inner life with Aspberger’s”, and in it Alix talks about her amazing life and how she has achieved so much.

Living With Aspberger’s Syndrome

As a child, Alix Generous was misdiagnosed with the wrong disorder and had a  great deal of difficulties. It wasn’t until the age of 11 that she was finally correctly diagnosed with Aspberger’s Syndrome, a high functioning form of Autism. Since then she has made amazing progress.

At 17, she attended the College of Charleston, where she studied Psychology, Molecular Biology, and Neuroscience. When she was 19, she wrote a paper on Coral Reefs and Microbiology that won the 2012 Citizen Science Biodiversity Competition, and she subsequently was invited to speak at the United Nations on her research. Currently, Alix is working as a Neuroscientist, author, and tech consultant, and she gives speeches around the world on issues concerning science, mental health, STEM (Science Technology Engineering and Math) and women.

Alix Generous joins us on Skype for this episode of Special Parents Confidential to talk about her life and her work, as well as sharing insights into how people with Autism can be helped and supported.

She also discusses how parents, families, and society can benefit through understanding and acceptance of people with Autism and Aspberger’s Syndrome, as well as all people with any physical or developmental disabilities. As she says on the main page of her website:

“This world is in desperate need of creative and intellectual minds to solve complex problems. But before we can do that, we need to build a culture that accepts mental diversity.”

Links For Alix Generous

How I Learned to Communicate My Inner Life With Aspberger’s – Alix Generous’ Ted Talk Speech on the Ted Talk website.

Alix Generous Website 

Facebook Alix Generous Page

Twitter Account for Alix Generous

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Special Parents Confidential Episode 37 Act Early.

Learn The Signs. Act Early. 

Autism is a growing concern for parents across the United States and around the world. It’s estimated that 1 in 68 children will be diagnosed as being on the Autism Spectrum. The good news is there are now more effective treatments and therapies than ever before, and there is more credible research and information that can help parents, educators, and medical professionals work effectively with children and adults with Autism to lead healthy and productive lives.

To help parents understand what Autism is and how to better monitor their children’s developmental milestones, the Center for Disease Control and Prevention, commonly known as the CDC, has launched a new program website: Learn The Signs. Act Early.  From the website: 

“From birth to 5 years, your child should reach milestones in how he plays, learns, speaks, acts and moves. Track your child’s development and act early if you have a concern.”

In this episode of Special Parents Confidential, we talk to two guests from the CDC; Katie Green, who is project lead for Learn The Signs. Act Early, and Dr. Jennifer Zubler, who is a pediatric medical consultant for the CDC’s National Center on Birth Defects and Developmental Disabilities. You’ll learn about how the program began, some of the milestones that your child should achieve, the importance of early diagnosis, and how to talk to your doctor or pediatrician if you are concerned about your child’s developmental progress.

Important Links From The CDC:

Learn The Signs. Act Early.

Developmental Milestones.

Printable Milestones Checklist pdf.

Amazing Me – It’s Busy Being 3! Parents, this book for children ages 2-4 will show you what to look for as your child grows and develops. Whether you read this story to your child online or have a hard copy of the book, ask your child to find the koala bears. Each page with a koala bear also has a star and milestone at the bottom just for you. See if your 3-year-old is able to do some of the same things as Joey.

What To Do If You’re Concerned.

The National Center on Birth Defects and Developmental Disabilities. – Resource website from the CDC with great information on many issues for parents of special needs children.

As always a reminder that if you like this episode of Special Parents Confidential or any episode we’ve done, please share our site with your friends, family, and all your connections on social media. You can do this easily with the social media buttons located right below this paragraph. Like us on Facebook, follow us on Twitter, add us on Google Plus, Tumblr, Linked In, Pintrest, Stumble Upon, Reddit, or other social media sites that you prefer. You can also sign up for our email service and have new posts and podcast episodes delivered right to your inbox the moment they’re available online. That form is located to the right of this text. We’re also on iTunes, Stitcher, TuneIN, and Poddirectory as a free subscription and if you have a moment, feel free to write a review about our podcast on either of those services. Anything you can do to help spread the word about Special Parents Confidential will help us be able to continue these podcasts.
Thanks for your support!

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